Listening to the Patient Voice at the Heart of Health Care
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Abstract
Background: This presentation describes the use of digital stories to enhance and complement existing training and education around dignity, respect and privacy in the mental health context by providing a platform for the patient voice
Article 8 of the Human Rights Act (1998) gives the right to respect for private and family life, home and correspondence. Privacy and dignity are fundamental to the wellbeing of individuals within the healthcare system and every member of the nursing workforce should prioritise dignity in care, placing it at the heart of everything they do. Yet, many staff need more training on these issues, particularly when caring for those with mental health needs .
Providing dignity in care focuses on three integral aspects: respect, compassion and sensitivity, expressed through behaviour and attitude. When dignity is absent from care, people feel devalued, lack control and comfort. They may also lack confidence, be unable to make decisions for themselves, and feel humiliated, embarrassed and ashamed. Whilst patient involvement, via patient representation of managerial boards or formal patient groups, is encouraged there is a suggestion that patients, especially vulnerable patients, may find such activities daunting
Objectives: A mental health Trust in a large city in the Northwest of the United Kingdom wished to explore ways in which digital technology could be used to raise awareness of issues such as dignity and respect commissioned a series of three-day digital storytelling workshop enabled survivors of mental health services, clinicians and managers to work together as partners, bringing their own expertise, to develop a shared understanding of of dignity and mental health- and to create ten digital stories
Methods: Digital Storytelling as a specific multimedia form emerged in the US in the 1990s and involves the creation of short, often personal ’stories’ on industry standard software and hardware in workshop environments.
They are short multi-media clips whose power comes from weaving together images, music, story and voice. The focus, content and presentation of the stories is entirely in control of the story teller
Results: Digital stories created by mental health service users sit at the heart of an online educational resource. Watching the stories enables staff to engage with the affective dimension of care, and reflect on the impact of care that promotes dignity – or the lack of it – through participation in an online/offline discussion about the elements of dignity inherent in the story.
At the end of the workshop the service users reported enhance feeling of empowerment and worth. The mental health trust concerned went on to use the stories in other ways to ensure that the voce of the patient was always at the heart of all decision making and
Conclusion: Use of the stories in undergraduate nurse education, CPD, and induction and recruitment reveals creative engagement with complex issues and highlights a growing awareness of the need for dignity-conserving care in mental health care.
Article 8 of the Human Rights Act (1998) gives the right to respect for private and family life, home and correspondence. Privacy and dignity are fundamental to the wellbeing of individuals within the healthcare system and every member of the nursing workforce should prioritise dignity in care, placing it at the heart of everything they do. Yet, many staff need more training on these issues, particularly when caring for those with mental health needs .
Providing dignity in care focuses on three integral aspects: respect, compassion and sensitivity, expressed through behaviour and attitude. When dignity is absent from care, people feel devalued, lack control and comfort. They may also lack confidence, be unable to make decisions for themselves, and feel humiliated, embarrassed and ashamed. Whilst patient involvement, via patient representation of managerial boards or formal patient groups, is encouraged there is a suggestion that patients, especially vulnerable patients, may find such activities daunting
Objectives: A mental health Trust in a large city in the Northwest of the United Kingdom wished to explore ways in which digital technology could be used to raise awareness of issues such as dignity and respect commissioned a series of three-day digital storytelling workshop enabled survivors of mental health services, clinicians and managers to work together as partners, bringing their own expertise, to develop a shared understanding of of dignity and mental health- and to create ten digital stories
Methods: Digital Storytelling as a specific multimedia form emerged in the US in the 1990s and involves the creation of short, often personal ’stories’ on industry standard software and hardware in workshop environments.
They are short multi-media clips whose power comes from weaving together images, music, story and voice. The focus, content and presentation of the stories is entirely in control of the story teller
Results: Digital stories created by mental health service users sit at the heart of an online educational resource. Watching the stories enables staff to engage with the affective dimension of care, and reflect on the impact of care that promotes dignity – or the lack of it – through participation in an online/offline discussion about the elements of dignity inherent in the story.
At the end of the workshop the service users reported enhance feeling of empowerment and worth. The mental health trust concerned went on to use the stories in other ways to ensure that the voce of the patient was always at the heart of all decision making and
Conclusion: Use of the stories in undergraduate nurse education, CPD, and induction and recruitment reveals creative engagement with complex issues and highlights a growing awareness of the need for dignity-conserving care in mental health care.
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